Central Middlesex Hospital Hosting Sickle Cell Event

Working with the community to make improvements in treatment

Central Middlesex Hospital.
Central Middlesex Hospital. Picture: John Goodman

Related articles

More Support Locally for the Blind and Partially Sighted

Mental Health Cafe Opens on South Ealing Road

Local Government Ombudsman Admonishes Ealing Council

'Shocking' Safety Flaws in Ealing's Housing Provision

Participate

Sign up for a newsletter from ActonW3.com, ChiswickW4.com and EalingToday.co.uk

May 25, 2023

The London North West University Healthcare NHS Trust (LNWH) is holding its second public engagement event for patients, service users and other community members affected by sickle cell disease.

The event, which will be held with support from the Sickle Cell Society, is designed to help the service to work with community members on making long-term improvements in treatment.

Those affected by sickle cell are encouraged to come to the Avery Jones Lecture Theatre at Central Middlesex Hospital between 5:30pm and 7pm on Thursday 8 June.

The service believes it has already made significant progress in the last year, from establishing a dedicated sickle cell admission area on its haematology ward to offering the new NICE-approved monoclonal antibody treatment Crizanlizumab.

It is now focussing on a range of other initiatives, including improving access for patients and service users, and developing dedicated educational programmes. Many projects draw on feedback and requests from the public engagement event held in October last year.

Chief Executive Pippa Nightingale said, “At our last event, we were privileged to listen to and learn from the lived experiences of many people in our communities who live with sickle cell disease and their family members.

“We pledged to act on both local and national issues raised during that event, and I’m looking forward to being able to report back on what we’ve done.

“It’s vital that we continue the conversation about how we can build a sickle cell service that really works for our local people: we remain committed to listening and acting on what we hear.

“I hope that many of our patients will join us for our engagement event to hear how we’ve put their feedback into action, and to share more ideas for the future.”

Like Reading Articles Like This? Help Us Produce More

This site remains committed to providing local community news and public interest journalism.

Articles such as the one above are integral to what we do. We aim to feature as much as possible on local societies, charities based in the area, fundraising efforts by residents, community-based initiatives and even helping people find missing pets.

We've always done that and won't be changing, in fact we'd like to do more.

However, the readership that these stories generates is often below that needed to cover the cost of producing them. Our financial resources are limited and the local media environment is intensely competitive so there is a constraint on what we can do.

We are therefore asking our readers to consider offering financial support to these efforts. Any money given will help support community and public interest news and the expansion of our coverage in this area.

A suggested monthly payment is £8 but we would be grateful for any amount for instance if you think this site offers the equivalent value of a subscription to a daily printed newspaper you may wish to consider £20 per month. If neither of these amounts is suitable for you then contact info@neighbournet.com and we can set up an alternative. All payments are made through a secure web site.

One-off donations are also appreciated. Choose The Amount You Wish To Contribute.

If you do support us in this way we'd be interested to hear what kind of articles you would like to see more of on the site – send your suggestions to the editor.

For businesses we offer the chance to be a corporate sponsor of community content on the site. For £30 plus VAT per month you will be the designated sponsor of at least one article a month with your logo appearing if supplied. If there is a specific community group or initiative you'd like to support we can make sure your sponsorship is featured on related content for a one off payment of £50 plus VAT. All payments are made through a secure web site.

 

Bookmark and Share